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This blog is now all about my personal life, including updates concerning Jerry's health. For quilt and pattern related posts please visit HillbillyQuiltShop.blogspot.com

Tuesday, August 26, 2014

And the verdict is in

I've not blogged in a couple of weeks because Jerry has just been going thru some tests and such and it was easier for me to just handle it all at once. Taking a look at each issue:

1) Chrons.
He had a colonoscopy and upper GI done last week. They found that his esophagus is getting infected again. He cannot take the Chrons meds because of his liver so they are actually treating it with blood pressure medication.
Sound odd? When your blood moves through the body, it actually uses pressure..and thus when you have a sore it throbs. If you reduce that pressure then that reduces the blood going to those sores and it calms them down so they (hopefully) will be less irritated. So that is what they are trying. He WILL have to have them go in and "tie off" the area before they start treating his liver. The sores are a problem child.
He also had a polyp in his colon. Biopsy showed no cancer but is the type that likes to turn into cancer (and he's had colon cancer before) so they will keep it monitored.

2) Hep C
He has to go through the treatments. A new medication comes out in October that they are waiting for and will start him on. He has to have these treatments because Hep C can transfer to a new liver. He is jaundice and weak so they are treating him with meds to keep the ammonia build up in check.

3) Liver transplant
When we last chatted this was just something way down the road if the treatments didnt work but things have changed. He will be getting a transplant. There is a chart, just like with any organ transplant. The chart goes up in the 40s or so (cant remember exact). He is currently at a 14 and it has been climbing steadily to that point for 2 years. Once it hits a 22 he will be admitted in the hospital immediately and given a new liver. Not really a waiting list..they will have him one within 48 hours after he hits "level 22" .

We have to attend classes and clinics to be ready for this.

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How is Jerry?
He is ok. Coming to terms. Hard to deal with all that is wrong with him and you know how you are sick and just want it to be over? I cant imagine what the feeling is like to know that you will never again not feel sick. Even if you live 20 more years you just won't feel good. (when you consider all the things wrong with him. )
He is turning in disability papers to get long term from work. We wont get the funds for that until it hits 90 days. He doesn't think about the financial end alot..leaves that to me. I think he just has to draw a line of what he can take.

How is Stephen?
VERY clingy to his daddy. He wont let him out of his site. He's taken to watching a whole lot more tv than I would like normally but if that is what he can do with his daddy then so be it. His current favorites are the old black and white Lone Ranger. He had a well child check up while Jerry was in the hospital a couple of weeks ago and Stephens doctor took the time to get a graph out and show Stephen a liver and point to where it is in his tummy. Stephen stays very interested in everything... even to the point yesterday while doing a quick little ER visit for lab tests Stephen insisted on seeing how the whole "pee in a cup and leave it in the little door" thing works. Jerry rolled his eyes but let Stephen come along and see. LOL!!!

How am I?
Not as emotionally wrung out as I was a couple of weeks ago. I still feel the weight of the world on my shoulders, but just knowing they are working on Jerry is such a HUGE load off. My biggest worry is money. How a family is supposed to survive with a very small income from fabric sales (August is and always has been the slowest month of the year by the way ), and still pay insurance premiums and meds and co pays..wow it is a lot to figure out. But if I know how to do anything its sell stuff. My stash and putting sales on in the shop are going to be what gets us by and God will take care of the rest.

You call could help! Spread the word!!

I sell ALL my fabric (including my awesome amount of destash stuff, new fabric etc) here :

https://www.facebook.com/groups/Ozarkfabric/

And all my patterns, notions and paper pieces here:

http://hillbillyquiltshop.com/

4 comments:

beaquilter said...

Oh my Tonya! so sorry, still praying for you guys....
I now want to show the progress of the ahhh 7 wishes block swap so maybe more people will buy it? I have 2 or 3 blocks made so far, think I should? (your is done....)
Did you hear from any magazines?

Belinda said...

There will be a day when the burdens of this place will be no more.

Ann Marie @ 16 Muddy Feet said...

Hang in there Tonya, it has been a long bumpy road so far, and you have made it. Things are going to start getting better and soon enough everything will be just fine. Hang in there.

Carla said...

Still on the roller coaster but at least you have some answers. Of course not necessarily ones you want.
You and the family are in my prayers.
Take it one day at a time.
Hugs from Texas