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This blog is now all about my personal life, including updates concerning Jerry's health. For quilt and pattern related posts please visit

Wednesday, August 13, 2014

And now is when I get all human on myself...

Today.. we had to make a decision to keep Jerry home. Its not an easy one..I'll get to that in a minute.

First I will say that after arm twisting, Jerry has an appointment in two weeks at the liver center. They said "to be aware that we will be discussing all the treatment options". Not really sure what that means since we have already discussed the expensive one. But, of course, that statement wasn't necessary as we had no intention of leaving that appointment without discussing them. We consider the appointment a victory because yesterday morning the treatment center had said not to come in until mid October. After telling them that is not acceptible I guess they finally decided to read Jerry's charts from the hospital and bumped it up considerably.

We really like Jerry's KU team.. except the transplant (liver) treatment center. He's just a number for them. For example, his gastro doc's office was scheduling a post hospital evaluation before we left the parking garage when Jerry got released. This is typical of KU..except, um, the place that we need the most attention from at this time.

Anyway, that's that and we sit until the end of August.

SO.. Jerry can not work. Which leaves us in a bit of a pickle. He did go talk to his personnel dept today and it seems we can try for shared work leave next month. (too late for this month. sigh. ) He is not eligible for any disability for work until he misses 90 days.

So.. it seems we just squeeze by until.. ummm. (Here is where I am getting all HUMAN).. I have NO idea how we are going to get by. Now, of course, I will leave it up to God. I mean..I have no choice but to do that. Thank goodness because that is the best place to leave it. But.. I am a woman. And I like to worry. And even Jerry is concerned about a few things. Here are the concerns that have me a bit on the agitated side tonight which will cause me to pull away from work (the facebook always communicating part)  and pretty much want to be alone to come to terms with how to handle it. You will also hear my fussy come out in the following words because I am agitated (and human). I think after I post this I need to go hide. Since I always have a little bug attached to my side maybe he and I will go on a evening hike to get mom's worries and agitations all hiked away. Well anyway, here are the I have no ideas but it is what it is...

1) We have to pay insurance for Jerry out of pocket. With less income. Someone asked me if ObamaCare kicked in or came into play here. Nope. I applied for it (because it was the law) and I am exempt from paying for it because we are too low income. And that was before we lost Jerry's income. So, I will remain without any insurance and we will pay Jerry's, and God has that all figured out how because I sure don't.

2) Jerry has to pay child support for his two parently kidnapped kids. Most of you know the story, not going there right now for those that don't . There are some old blog posts around here somewhere if you dig hard enough. Point is..Jerry is concerned that he will go to prison for not paying the child support. I was in shock. I asked him, " How in the world can they put an old sick man in prison when he's too sick to work? "
His reply..they do it all the time. He works in a prison. He sees it all of the time.

3) We are considering me getting a part time job to make ends meet a wee bit more. I could work the weekends while Amy watches Stephen. I could also work a few hours in the mornings. I know most of you will say this is impossible with trying to juggle Ozark as well, but sometimes in the midst of strife we achieve the impossible thanks to strength that is not our own. I don't know. We will have to have a family meeting about this topic in the next couple of days.

In the meantime my teenager is driving me crazy because he does not seem to understand the concept of "leave me alone". You would think after all these years he would 'get it' when mom is stressing it is best to just give me space.
Ha! he is standing over my shoulder and will read this. Wave hi to him.

Ps I owe emails back to a couple of you. I tend to save the longer ones when I want to send a nice long reply until I have a moment alone to send a nice long reply. Coming soon, promise!!


CherylT said...

Possibly contact a free lawyer for bankruptcy info (before it happens)
and advice on what and how to pay what first and/or when.

Janet said...

If I can help you with the business(for free)in any way I would be willing to do that. I don't know if that is a possibility from afar though. Let me know.

MICHELLE said...

You're in my prayers!

Tami C said...

My husband ended up in sort of the same situation right before he retired. He had 2 more months before he was eligible for retirement with the city. He had a little time saved up and they said that if he worked, used vacation or sick leave for at least 20 hours per week, that he could take leave without pay for the other 20 hours. That allowed him to get the additional time in service that he needed and they covered the cost of his insurance. You might want to find out if Jerry could do something like that. The thing that gave us that extra month was that he accrued vacation and sick leave for even though he wasn't actually working. I'll keep you and yours in my prayers Tonya.

QuiltSue said...

I don't know your systems, so I can't offer any practical suggestions, but just know that I'm thinking of you both.

Sheila said...

I wish I had words that could help but please know you and Jerry are in my thoughts and prayers .

Michelle Smith said...

Have you gotten a disability lawyer? He is obviously sick enough to qualify. They got it for me. There is a limit to what they charge so you won't get ripped off. You might even get back pay. Please say you will do it.

VickiT said...

Please don't feel as if you need to email me back since you have far too much on your plate.
It won't solve all your concerns, but it sure should give some breathing room. You might want to go to the courthouse and ask for the place you can write out an explanation as to the reason why and fill that paperwork out to petition the court to suspend the child support payments. Your husband can do this himself without a lawyer as you'd be requesting a suspension and I find it very hard to believe any judge not allowing it after hearing the reasons for requesting it especially with your husband's health and how long he's been dealing with that and still in the past keeping up with those child support payments. It's his choice how long he will allow them to be suspended or he may require payments to continue but on a vastly reduced amount. It is worth a shot.

Carla said...

Hugs and prayers to y'all.
I do understand the teenager problem all too well. Actually my daughter use to do that around the time she turned 5. LOL I would ask for a few minutes to regroup and I can't stay that every happened.