I have had my reasons for not sharing as much about Jerry online but I think after the months of prayers, cards and kind emails, it is only fair to update how he/we are doing on occasion.
Jerry is no longer being seen by any Liberty Hospital doctors. He has been working on making the switch over to KU doctors. Keeping in mind a visit to KU is a day long affair for us; 3 hours in the car alone. He never feels well; but the last two weeks he's felt pretty poorly. Hes missed a lot of work lately. This is something that he will struggle with his entire life. Some good times with many downtimes in between. Since I have so many new groupies in the fabric group and new ahhhh buyers that might like to know the personal side so I will give a quick run down of what he has and list the Dr type beside it.
Diabetes and neuropathy--endocrinologist
Crone's and history of colon cancer--gastroenterologist
Hep C (he hates me sharing this but it was from a blood transfusion when he had cancer. it is important to know...more in a bit)--Hepatologist
History of Stroke (at least ten)--neurologist
A-fib heart issues--cardiac specialist
Thyroid disease-- his PCP handles this for now
Of course knowing all of this you can imagine the amount of meds he takes. But the hep C, Chrons and diabetes all fight one another. They cannot treat them all at once. So the plan is to treat the Chrons right now (in fact he goes Monday to meet with his gastro doc to get a plan laid out. Up until now they have had to just treat the symptoms and get him stabilized.) Before long they will be doing a liver biopsy to see what stage the Hep C is and how the meds are affecting his liver.
The steroids that were completely necessary to get him back among the living are done now but it did a number on his diabetes. His eyesight has issues. He just got new glasses last week but his eyes continue to fluctuate. He struggles with his hands and fingers. Playing guitar is a thing of the past. His feet suffered the most. His neuropathy is horrible and due to the stroke/blood thinners they are not sure what they can give him. The doctors are looking it over and trying to come up with something that will not interact with all his other meds. For now, he just has to suffer with the pain and no pain meds.
He continues to work when he can until he no longer can. (Hes a man, he reads this blog so just don't go there!!) (( I love you husband))
How am I?
Well I still struggle to find ME time. I think I have it all planned out but then get setbacks. Like his being off work makes me feel like I need to sell more fabric. I went one week with sleeping every night but I failed in that this week.
I HATE being 'behind' and seeming to be unorganized. Invoices (both ahhhhhs and fabric) don't get out as fast as I like but I do the best I can I suppose. I know I take no time to sew or read or anything like that. The only ME time I can take right now is sleep.
(Now no pointing the finger at me until you have walked a week in my shoes. Seriously. I would not enjoy taking time to sew or read knowing I had work waiting to be done. )
How are the boys?
Stephen really really could not handle daycare--even though it was just two days a week. Wow what a change it made in that boy. He was depressed all of the time and cried day and night (even waking up during the night and having nightmares) begging us to not take him to school and that he needed his daddy. We figure it was just too much after him going through the stress of his daddy being in the hospital for three months. It took him about two weeks to realize I was not taking him back and he is our happy little boy again. He really is a laid back, nice child. By far my easiest of the three. (God knew I needed that!)
The neatest thing is he has become so attached to his daddy. When Jerry was sick, Stephen detached himself from him and it was a struggle to get him to even talk to his daddy. But now I have a hard time keeping him from waking his daddy up at 7 am to play! He loves to lie in daddy's bed and watch movies and they are best buds. Jerry is feeling well enough to play with him of the evenings and while I type they are out getting a haircut and Chik fil a.
Seth is doing well at helping me work. He now tapes all the boxes up for shipping and he rolls fabric to put into the boxes. (I cut, he rolls..it is a great system.) He usually watches Stephen of a morning while I handle morning messages.
Our schedule of sorts (especially important as the fabric groupies are always wondering where I am. Probably easiest to find me at like 2 am!!!)
While this does change--especially when someone gets sick--this is basically how we work things around here:
Morning--get Jerry off to work by 7:30. Wake Seth at 8. Go handle emails until 9ish. Have the boys come help put boxes out for pick up. Then spend the next little bit trying to package some Ahhhhs.
By 11 we try to be in school mode. Lunch at 1. Nap at 2. I often nap because I get more work done late at night. Seth does some school assignments during nap and has free time.
By 5 Jerry is home and in bed for a nap himself. We wake him up for dinner at 6:30 then I am hopefully working by 7:30. (if Jerry is having an off night I wait until bedtime.)
Stephen goes to bed around 10:30 so if I am not working already this is when I start.
Fabric and Ahhhh schedule is such:
Sunday--OFF (but I don't always get to. I try to stitch an ahhh up on this day)
Monday--list and cut fabric
Tuesday--list and cut fabric
Wednesday--list/cut/invoice fabric for shipping
Thursday--handle final fabric invoices
Friday--OFF (this is supposed to be Friday fun day for my boys and I am going to try to stick to it better)
Saturday--print packing slips, get ahhhhs taken care of for the week, order new fabric
Which brings us to today and I am completely off schedule. I have to go catch up on lots of fabric cutting because Atlantis has arrived at my house :)