I am so sorry that I've not been able to reply to your comments. I told Jerry last night, as I was holding his hand in the ER, that he has people from all over the world lifting him in prayer. It has been such a whirlwind, let me see if I can update you...
Last I posted was Saturday..before his surgery...
Jerry did have his gall bladder surgery as scheduled on Monday. But that was so minor and so much the least of our worries. He's not even ever complained about pain in his stomach. He was consumed by other problems!
The longer Jerry stayed in the hospital, the worse his headaches became. They finally did a CT scan on Sunday (or so) and said that he had an acute sinus infection. Jerry is allergic to penicillin so they cannot use a strong antibiotic to knock it out as quickly as one would like, but they still put him on a drip antibiotic. His headaches worsened and worsened.
He looked so forward to his gall bladder surgery...so that he could have headache relief. Nothing was touching the pain. Morphine, vicodin, percoset, all the good stuff...he still remained in horrible pain. For some reason we could not get this hospital to get through their heads that the gall bladder really was the least of the worries. But, he got his surgery and a few hours relief. In fact he even ate afterwards; his first food in over 2 weeks.
Late Monday night he went into his worst episode yet. Nurses trying to get help, but he was told by his doc that he would just have to 'ride it out' and she sent him home Tuesday--even though his pain was intense.
Tuesday night he was up all night in extreme pain. Wednesday the headaches continued. No meds were helping. I finally called the ambulance and insisted that they take him to another hospital. Had myself a nice little argument with Mr. Arrogant Paramedic before they left. I could not get through his big head that we could care less about the surgery that Jerry just had on his stomach...that we are concerned about his HEAD.
Anyway, new hospital--St. Lukes. So much better. The doctor and I had a nice little chat out in the hallway (do you know I never get doctors to do that at Liberty hospital?!) The doctor tried one type of med for cluster headaches. It didn't touch it. Jerry was still in horrible pain. So the ER doc called another doc down from the floor to take over Jerry's case...and he found something that worked! He did! My husband slept. It was so nice.
We came back home late last night and spent all night in extreme pain again as I dont have a 24 hour pharmacy here. Every two hours I was pumping Jerry with either percoset or ibuprofin. Today at noon he took his first dose of the new stuff (since leaving the ER)..and he's slept over 4 hours straight.
Cause of headache? Unknown. But not sinus as the other hospital suggested. He has no fevers. When in extreme pain he trembles violently and gets into the fetal position. They could be triggered by his Diabetic Ketoacidosis (DKA)...and most likely are. He's still not eating (although must feel a bit better because he wants eggs for dinner. I had to go run and buy some as we don't normally eat them, but hey, I'll feed him whatever he wants!--except sugar.) He is still not over his DKA. He is still very dehydrated.
I am just taking one day at a time. And this day is the first in a week that we've not had to go to hospital or ER. I really probably shouldn't speak too soon, but I am feeling pretty positive that all is good until his meds run out anyway.
He has neurological physician he has to go see eventually. But I think that needs to wait until next week. There is only one working day remaining in this week.. and for that we all just need R.E.S.T.!!!! (and make a few doctor appointments probably...)
Oh, I said this on fb but nearly forgot to put it here! You all know about my fabric group, well those wonderful ladies got together and donated all the money needed to pay for Jerry's prescriptions. You are not going to believe, WITH insurance they have totaled almost $500 --and the ladies collected just over $500 to help us. WOW! Do you know how nice it was to just pay those meds worry free? The ladies are going to do some other things too to help me pay other bills (like monthly meds, hospital stay, er visits (x2), ambulance ride, oy..I think I dont want to think about THAT anymore!). What a blessing the internet and all my internet friends have been to me.
How am I? better emotionally than I was last week. Tired and have so much work to do. I think I have a wish...even if Jerry needs time to mend, I just want to stay home all weekend, and NOT GO ANYWHERE. Yes, that is the wish for the next three days. But, really, I am doing much better than I was. Poor Jerry is not himself, and it is hard to watch him just lie in bed hour after hour after hour, shaking in pain. He never gets up. I really just want it all to end. That's my hope. Hopes are much bigger than wishes, you know.