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Sunday, December 11, 2011

Stephen's Adventure that he wished he never had.

The Blog Hop Giveaway is Right Here

My dear friends,

Some of you I emailed yesterday about Stephen. It is easier to explain one time to all this way. For those of you that are new...thank you for following and I will be around someday to visit. I have a sick little boy and I may not get to blog hop this time around. I am writing this at 3 a.m. and I just got my boy settled in his own bed...but who knows for how long.

Here is what is happening for those of you that do know our little Stephen. He has been sick for over a month. Fevers off and on the whole time. Sometimes it is stomach flu symptoms (for our International friends...vomiting, diarrhea and all the stuff that goes with it) and sometimes he has head cold symptoms. Last week they said he had croup. This week just another stomach virus. I got concerned because no one else in the family has had any stomach flu symptoms. None at all. Stephen and I share drinks all of the time. If he had a stomach virus all three times...I should have gotten it at least once. So should have others here at home. With all of the sickness he has lost a bit of weight.

Yesterday Stephen awoke and was vomiting yet again. And had a fever. I am not one of those worry mom's that take my children to the doc for everything, but I am starting to worry here. So, I took him to a special Children's Clinic. I wish I would have just stayed home! The doctor said that he may have a bit of Infant Anorexia. What??!! He wants me to feed Stephen butter on everything he eats to gain his weight back. (Not happening.) That is all the doc was concerned about...the weight loss...not what was causing the weight loss. He said he wants Stephen to go to a special 'failure to thrive' clinic where we can see a nutritionist. The most STUPID part of this was that Stephen was running a fever...and it was climbing while we were there. Enough so that the nurse noticed and said something. They gave him two medicines for it. Yep, I am sure that is Anorexia. Sudden onset about a month ago. Accompanied by fevers.

The next STUPID part of the trip was that they wanted to draw blood and were unsuccessful. So they just squeezed his hand and milked it out of him. Here they are holding him down for that torture.
THE HOSPITAL MADE ME REMOVE THIS PHOTO FOR NOT GETTING THEIR CONSENT. I guess I can understand that. But they did say that I could leave the lower one.
Everyone wave to the hospital staff. They are very nice at the patient advocate office.
 I zoomed in on his hand; it's blurry but you can see them just squeezing it out.
They did this for 3 viles of blood.
By the time they were finished his hand was covered in blood as was the nurses and the floor.

Bless his little heart, his hand is very bruised.
They also hurt his little man part by putting a catheter in.
 Every time he wets his diaper he wakes up crying.
Thus the reason I'm awake at 3 a.m.
One more look at my poor tortured baby.

Ducky was there to help him feel a bit better. 

We left with no answers. They found nothing wrong in his blood or urine tests.
But this mommy knows there has to be some reason he's been sick for over a month!
And most of you are a witness to that because I've been telling you here on the blog.
I am just going to let him get over this one this time. But if there is a next time in the next week or so, I am going back to that doc that was 70 miles away. 

Stephen did drink some water before bed and ate a couple of pretzels. He's woken once with a nightmare(I wonder why) and twice when he urinated. 

This is one adventure he'd rather just forget I am sure!
For you new people...Stephen has a page up top where all his adventures are recorded.
He is very popular and generally gets more comments than I do. 
I should just let him take over my blog. 

Good night all. Going back to bed now.


QuiltSue said...

Oh poor little lad. I hope everything can be sorted out quickly, and I think you should complain about that clinic and the doctor.

sandra said...

Am so sorry to hear that Stephen is still sick. How on earth anyone would suggest anorexia is beyond me. If he's not better quickly go elsewhere and refuse to be fobbed off.MUM KNOWS BEST!!!

Vroomans' Quilts said...

OK this is so totally wrong here. This needs to be reported. You need better health care - ask for a food alergy test - remove all wheat from his diet when he's ill.

Sunnybec said...

OMG that's awful, poor little man, he will never want to see the inside of a clinic again! Don't give up, a Mum always knows when her child is ill. Big Hugs Linda

Dorian said...

Oh Tonya!! I'm so sorry poor Stephen is going thru this!! My thoughts and prayers to you. There is for sure something wrong here! I hope you can find a decent Dr. who will treat this as should be. ((HUGS))

Linda said...

Oh Tonya, this is horrible! Poor little Stephen! I have been praying for him and will continue to do so! That Clinic should be reported for treating that little boy that way. Those Stupid people! Hang in there! Mommy always does know best.

Cherry Red Quilter said...

I just cannot believe that anyone would think this was the way to draw blood from a child, or anyone for that matter. I hope you can find somewhere else to go as I would have lost all faith in their ability to care for your child after the blood test let alone the anorexia nonsense.

Belinda said...

Well, I just am overwhelmed with things to say, but...I'll just say I'm so sorry for Stephen's terrible experience and that you had to watch it. Nothing worse than watching your child suffer. I hope and continue to pray that he will improve, and that you will get some answers.

Thank you for letting us know the results of the trip. Hugs to you and Stephen.

Diane H said...

My heart goes out to you and your dear Stephen. May you persist and find the answer to this. God Bless.

Pat said...

oh my, I'm lost for words, Tonya. :(
Poor Stephen, I hope he's on the mend soon. I'd agree with you - go elsewhere next time. *hugs* to all xx

LesQuilts said...

Leslie, the nurse practitioner speaking....
My heart is in spasm for both of you! My God, the incompetence of people!!!! They DO NOT have permission to take it out on your and your sweet little boy!
Zees, they could have sedated him, they could have used a topical freezing for both the vein and the catheter! They could have used a little attachable urine collector bag instead of a catheter!
1. Please give your son some tylenol before you go, or take it with you and after they take his temperature, GIVE him some!!!! It will help in soooo many ways!!!
2. Ask for topical lydocaine or Emla cream. It comes in patches or in a tube of cream, it gets applied to the skin and then covered for 30 mins.
3. Next time, ask them to sedate him with a little bit of medicine. He won't experience, much less remember all that trauma!
4. Next time you have to take him to the doctor or hosp, expect some major rebellion! You may have to find a book to read to him, or repractice some of the simple stuff, with a toy Dr. kit or something. Practice looking in his mouth, in his ears, listening to his heart. Rubbing tummies, etc. Let him look at you and hubby's, siblings too!
5. As immunizations only continue thru his life, practice with a little needle poke, on the side of the end of his finger, to desensitize him. May sound gross, but I can't tell you how many teens much less adults get faint at the sight of a needle, much less get one!
6. You can ask your Dr (or nurse practitioner) for a prescription for the Emla patches, take them with you on EVERY trip to the Dr., hosp, immunization clinic. You may have to practice, show him how the needle tip "pokes" without and then apply the patch, wait 30 mins and try it again. Your son will be very happy!
7. Print out my comment and take it with you to every appt. Just because a health provider doesn't want to take the time, doesn't mean it is not possible to do these things. If they don't want to take time, go see someone else, or ask for someone else!
Take care, Leslie

FabricFascination said...

Tonya, my husband and I will be praying for your little Stephen.

Rhonda at Cobblestone Quilting said...

Tonya, this makes my heart hurt for you and Stephen. Poor little guy. Follow your heart. If you feel something is wrong, get him to a competent pediatric specialist ASAP. Hopefully he is just a little run down and susceptible to the nasty bugs going around and this will pass. I will be lifting little Stephen up to the Lord in prayer today and in the days to come.

devotedtoquilting said...

Poor little kiddo. I'm so sorry to hear he is still battling whatever is wrong with him.Pfft, infant anorexia. No. Don't you just love when doctors make things up because they don't know? I hope you and he, find the cause soon so he can be healthy, active, and posting on your blog again. Quilted blessings to you both. Nita

Heather said...

I really hope those nurses get in trouble for doing that! They should have asked for help or any other number of things. I really hope you all can figure out what's wrong & that he feels better soon!

Jsoosay said...

That is so sad. I will keep both of you in my prayers and thoughts. I was an emergency room child with asthma and I still remember how scared I was through all that. I hope that he gets feeling better soon.

Carrie P. said...

OH, how horrible for you all. It is tough on mom's when our children are suffering.
I am saying a prayer that God will heal your son.
Praying for you too that God will give you wisdom and an answer.

Christine M said...

Poor little Stephen. How awful for him and you. I'm so sorry to hear that he's still not well and then had to go through all that. Give him a big hug from me. Christine xxx

Grace InAZ said...

This is so crazy! I am at a loss for words at how horrible this is! Well, maybe one word - incompetent! I would never step foot in that clinic again and would send them a very steamy letter!
I hope your little one is feeling better soon and whatever is causing the sickness goes away completely!
Hugs, GraceinAZ

Patty@Granma's said...

Oh, Tonya, what an awful time for such a sweet little guy!
I am so thankful that all my kids were a)healthy as horses, and b) that our doctors here are some of the very best!
Lots of Hugs for Stephen!!

Fiona said...

oh poor Stephen and poor you... it is so hard for mums to watch.... thinking of you lots... in my experience mums have very on target gut feelings that something is wrong ... and I hope they find it soon...

Snoodles said...

Oh, poor sweet lil Stephen...I am still praying for you, and your mommy and all the rest of the family. Tonya, I have walked out of dr. offices before because of incompetence - never forget that you, his mommy, know far better than they, that he needs help. I want him to get better so fast...but if he still has issues, please, please go to that other dr.
Warm hugs to you and your baby.

Deb said...

Tonya, I am so sorry your famiy has had to go through this. What a terrible experience for you all, especially poor Stephen. I hope you find out what is wrong soon. Not sure how the health care system works in the US, but I would be looking for another doctor.

Needled Mom said...

This has got to be a mom's worst nightmare. As a pediactric nurse, I can tell you that there are much better ways of handling the situation. Poor Stephen AND poor you. I will keep you in my prayers that they find some answers for all of you.

Marcia - Crafty Sewing and Quilting said...

Years ago my daughter was sick with stomach flu and fevers all the time. She was 8 years old. She was very very skinny and they told us the same thing - that it was like an anorexia too. It turned out to be her sinuses - they were infected and impacted! It was finally found after many tests and needle pokes and many hospital stays. Our family Dr. sent us to to Mayo Clinic in Rochester MN where she had a sinus surgery to ream out the sinuses and had the natural openings from her nose widened to let air flow better when she would get an infection. It took about 2 years to find the cause. Stick with it till they find what it is. Keeping you and Stephen and your family in our thoughts and prayers tonight and always...

Sharon said...

Oh Tonya! It amazes me that some doctors and nurses still have their jobs. What a horrible experience for Stephen and you as well. You know what's best for your little man. Definitely a different doctor if there is a next time. I am praying for him and you too! ((HUGS))

The Tulip Patch said...

sounds like he might have a bacterial or viral infection in his gut. They check for that with breath tests. I had a viral infection in my small intestine once and I was SO SO sick for over a month. I would get nauseated a lot and then have terrible cramps usually in the dead middle of night or after I ate. I had bloodwork and sonogram which showed no infection but finally after a ct scan they saw a flare up in my intestine which indicated. infection. Oddly enough the resist I drank for the scan helped me as well as kefir. Are you able to get any yogurt or kefir down his stomach? Might help balance out the bacteria. POOR STEPHEN! I knwo you're a good mom. That failure to thrive doc sounds like a nutter. Go back to the good one.

KatieQ said...

I'm so sorry to hear what your little man went through. We went through a similar "blood letting" when my son was young. I'm usually a low key, sort of quiet person, but my children (now 23 and 26) still remember when "mom went berserk" at the blood technician.
I know you must be hurting having to watch your little guy suffer. Hopefully, all will be well soon.

Quiltin' Sandy said...

I am so sad to hear about what your little boy has been going through, and how upsetting for you as well. I think that doctor is a ratbag!!!
PLEASE get another opinion!!!
When My eldest daughter was 6 weeks old we called the doctor ( they did house calls then) he told me I was just a fussing first time mother, and she just had a runny nose. 2 days later after we called a different doctor, mu baby was in an oxygen tent in ICU because she had golden staph infection in her lungs. She is a mother herself now, but we nearly lost her due to a doctor's incompetence.
I am sending you lots of thoughts, prayers and hugs from Australia. Sandy.

Allie said...

Oh that poor little guy - I am outraged that they put him through that! Girl, don't go back there. I'm praying for both of you - you need a good diagnostician to look at him, one that won't poke his poor body like that. Anorexia indeed....good grief...and it sure as heck isn't failure to thrive. I hope you both get a good night's sleep, sweetheart!

Quilting Under The Influence said...

Hang in there...

elliek said...

As Lesquilts said Emla cream is a godsend. My kids have had lots of drips and blood tests and it helps. I am appalled at the way they treated your poor little boy. You will have been suffering too watching. I hope they find the cause soon and he makes a speedy recovery.

Michelle Olsen said...

I'm so sorry this is happening to you guys. It almost made me cry just to read it. I have two daughters, 8 & 10, who have a good deal of health problems (my youngest has pneumonia currently), and I can sympathize with your situation. I hope Stephen feels better soon and that you can figure out what's going on with him. You are doing a great job! Take care :)

Melissa said...

Oh the poor little sweet heart!! And what's with the butter? REALLY? Butter? I mean I have heard of the old wive's tale of putting it on a burn (which you actually shouldn't do), but using it for a fever? And if his tummy isn't upset now, it will be!! I'm with you - if it happens again, 70 miles doesn't sound far a all!

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